PIES - Feedback

feedback

Online User Questionnaire

User information

You are being invited to take part in an evaluation study by filling in the questionnaire below. If you would like to know more about why the study is being done you can read about it by clicking here to view the User Information Page.

Feedback from local PIES users

If you are a cancer patient, carer or professional living or working within the districts of Barnsley, Bassetlaw, Chesterfield, Doncaster, Rotherham or Sheffield, you may have already completed and returned a paper questionnaire. If so, you need not fill in this online version which has essentially the same content. If you are a local user who has not returned a paper questionnaire, we would be very grateful if you use the online questionnaire below to give us your views. If you have already completed the online or paper versions but now want to send additional comments, or you simply prefer not to go through the questionnaire just now, you may use the Short Feedback Form instead.

Feedback from PIES users elsewhere

If you are not based within the districts of Barnsley, Bassetlaw, Chesterfield, Doncaster, Rotherham or Sheffield, we would still be very grateful for your detailed feedback about the PIES website via this online questionnaire. Or if you prefer not to go through the questionnaire at the moment, you may instead send comments via the Short Feedback Form.

Online User Questionnaire

Part A: About You

In this section we are asking about you and your information needs.

1.	Please tick the box which best describes your circumstances:
	I am a person diagnosed with cancer I am a person being investigated for cancer I am a husband/wife/partner of a person with cancer I am a child of a person with cancer Other description - please write it in here:
2.	Are you male or female?
	Male Female
3.	My age-group is…
	18-24 25-34 35-44 45-54 55-64 65-74 75-84 85 and over
4.	Please tick the box which best describes you:
	English is my first language English is not my first language but I have no problems understanding what I read English is not my first language and I sometimes have problems understanding what I read
5.	I would describe my ethnic origin as…
	White Black Caribbean Black African Black other - please describe: Indian Pakistani Bangladeshi Chinese Any other ethnic group - please describe: Prefer not to say
6.	Please tick the box(es) which best describes your employment situation.
	Please tick all boxes that apply Full-time employee Part-time employee Self-employed Unemployed Full-time student/trainee Retired Permanently sick Home-maker
7.	Do you have any disabilities?
	Please tick all boxes that apply I suffer from dyslexia I am blind/partially sighted I am deaf/have a hearing impairment I am a wheelchair user/have a mobility impairment I am a person with learning difficulties I have a disability not listed above - please describe here:
8.	What is the main type(s) of cancer you are looking for information on?
	Please tick all boxes that apply not one single type, just looking for general information cancer of the breast cancer of the prostate cancer in the gastro-intestinal tract/digestive system cancer of the lung cancer of the brain lymphoma female cancer cancer of the bladder oral, head and neck cancer other cancer - please write it in here:
9.	What kind of cancer information are you looking for at this stage?
	Please tick all boxes that apply Causes of the illness Type of illness Treatment choices Side effects of treatments Control of distressing symptoms Complementary therapies (e.g. relaxation) Voluntary organisations/self help and support groups Financial benefits/social security Family issues/close relationships Communicating with children about illness Body image/sexuality Local services Other - please write it in here:
10.	Where do you live? Please select from the dropdown list:

Part B: About your use of the internet

In this section we are asking about how you use the Internet in general.

11.	How much experience of using the internet do you have?
	Great deal of experience Fair amount of experience Very Little Experience
12.	Do you have access to the Internet at home?
	Yes No Don't know
13.	Do you have access to the Internet at work, school or college?
	Yes No Don't know Not applicable
14.	Do you have access to the Internet in a public place near where you live - for example, in a library, community centre, café or shop?
	Yes No Don't know
15.	How often have you used the Internet for finding medical or health information?
	never on 1 or 2 occasions on 3 or more occasions
16.	How often have you looked for cancer information on the Internet?
	never on 1 or 2 occasions on 3 or more occasions
17.	Have you already given us some feedback about PIES via the paper questionnaire?
	Yes No Don't know

Part C: About your use of the PIES website

In this section we are asking specifically about your use of the PIES website.

18.	When did you first use the PIES website?
	Today Within the last week 2-4 weeks ago More than 4 weeks ago
19.	When was the last (i.e. most recent) time you used the PIES website?
	Today Within the last week 2-4 weeks ago More than 4 weeks ago
20.	On how many different occasions have you looked at the PIES website?
	1 occasion only 2-3 occasions 4-5 occasions 6-10 occasions More than 10 occasions
21.	When you used the PIES website, on average, how long did a typical session last?
	5 minutes or less More than 5 minutes but less than 30 minutes 30 minutes or more but less than 60 minutes 60 minutes or more
22.	How do you rate the overall look of the PIES website - the colours, text, images, shape of pages etc.?
	Very poor Poor Fair Good Very good Can't say
23.	How easy or difficult is it to find your way around within the PIES website?
	Very difficult Quite difficult Neither easy nor difficult Quite easy Very easy Can't say
24.	Which of these statements best describes the main way you looked for information within the PIES website?
	I mainly browsed around the PIES website (I mainly looked for information by clicking on titles, headings, other text or links) I mainly searched the PIES website (I mainly looked for information by typing words in the search box, then looking at the results. I mainly used a combination of both browsing and searching to look for information. Can't say
25.	Generally, how do you rate the PIES website to find relevant and reliable information?
	Very poor Poor Fair Good Very good Can't say
26.	Is there any specific information or particular links you looked for in PIES but could not find?
	No Yes - please write it in here:
27.	Have you used the area of the PIES website that gives a directory of local cancer services?
	Yes No Not sure
28.	How do you rate the area of the PIES website that gives a directory of local cancer services?
	Very poor Poor Fair Good Very good Can't say
29.	How important to you is the principle of the PIES rating system for information (the number of pies which are marked next to some resources to indicate their quality)?
	Very unimportant Quite unimportant Neither important nor unimportant Quite important Very important Can't say
30.	How important to you is it to be able to read other users' comments about websites that PIES links to and/or to add your own comments?
	Very unimportant Quite unimportant Neither important nor unimportant Quite important Very important Can't say
31.	Have you used the 'My Notebook' facility?
	Yes No Don't know
32.	How do you rate the 'My Notebook' facility?
	Very poor Poor Fair Good Very good Can't say
33.	How often have you searched MEDLINE after following the link to PubMed from PIES?
	On 1 occasion only On 2-3 occasions On 4-5 occasions On more than 5 occasions Never Don't know
34.	What sort of personal training or help in how to use the PIES website did you receive?
	None Someone gave me a brief demonstration to get me started Someone gave me a brief demonstration to get me started, and was also available for extra help while I used PIES Someone gave me a brief demonstration to get me started, was also available for extra help while I used PIES, and also supported me step-by-step throughout the training session Other - please describe:
35.	Was the training you received in preparing you to use the PIES website adequate or inadequate?
	Inadequate - please explain in what way it was inadequate: Adequate Can't say
36.	How easy or difficult was it to find cancer information on the Internet before you used PIES?
	Very difficult Quite difficult Neither easy nor difficult Quite easy Very easy Can't say
37.	Will you use the Internet for finding cancer information in future?
	Yes No Don't know
38.	From what you have seen so far, how important to you do you think the PIES website will be for finding cancer information in future?
	Very unimportant Quite unimportant Neither important nor unimportant Quite important Very important Can't say
39.	If you would like to add any other comments about the PIES website please write them here:

Thank you very much for your help.